Archive for June, 2014

I had my genetic counselling appointment today.  Although I had one previously, it was about four years ago. So the high risk program set me up for another.  I am not sure if I had a choice or not in the matter, but I certainly didn’t mind having a refresher.  The appointment was for an hour […]

Free My Data


Since it’s been nearly four years since I last read up on the major findings BRCA1/2 research, I have been expecting to find some exciting new news.  So here’s one new tidbit I have found: the Free My Data movement. This is initiative setup by a consortium of genetic companies and researchers to encourage BRCA patients (including […]



My (second) genetic consultation is coming up soon.  BRCA is certainly on my mind more than usual.  And my mind is not thinking the along the usual lines. When going through the shock, worry, and frustration of learning about BRCA the first time, I made up my mind that I would face up to the […]



Tonight I tried to wade through the papers of my financial life.  Not sure why I thought tonight would be a good time, but I guess wanted at least some sense of accomplishment today and a feeling that I am pulling a few things back into order.  I didn’t get too far but it’s got […]

Four years of screening later…  I am still here.  My mom is not. I’m stumbling back to this blog to write because I don’t really know where else to go.  I first started this blog when I had just found out my mother had been diagnosed with breast cancer, and it was hereditary.  Not having […]